Cystic Fibros<em>is</em> Looking Good

Established in 1964, the Cystic Fibrosis Trust supports “excellence in research and clinical care, as well as providing practical support and advice to people with Cystic Fibrosis and their families,” and is the only UK-wide charity focusing solely on cystic fibrosis (CF). The organization funds research, sets standards of CF care, and provides information and advice to people with CF and their families. But the main challenge with CF remains: explaining what it is and raising awareness. “Cystic fibrosis,” explains the Trust “is chronically misunderstood, kills thousands worldwide and is carried unknowingly in the genes of millions. It’s often invisible to the naked eye yet destroys lives, stopping them short, inflicting hardship and distress on patients